Wednesday, April 11, 2007

Links from Alma

Posted by Alma on July 22, 2006 at 05:47:04:In Reply to: Lorie...pain 5th vital sign posted by Alma on July 22, 2006:
Lorie,I should have just posted the link below for those needing info on chronic pain. This link will take you to the forms you may want to print out and take to your dr. I keep the one where there is just a drawing of the human body in my wallet along with my medical history. This way all I have to do is hand it to the dr or nurse. It sure helps to have it filled out before seeing a dr or being admitted to the clink because usually when you are in bad pain you have a hard time trying to describe the pain. This scale will provide it for you.http://www2.rpa.net/~lrandall/index.html
Follow Ups:
Posted by Alma on August 05, 2006
Celeste,Do you think we could add this to the link at the bottom of this page and/or to the blog Brett is working with? I think it pertains to some of the issues many of us have and I am also thinking of how it would help this particular organization to be read by other viewers.
http://www.myida.org/index.html
http://www.myida.org/index.html

Posted by Alma on August 11, 2006
I know some of you are trying to get your social security disability. I found these links on the IDA web site and thought you might could use them.
Social Security Disability Advocate - USAdvocates.org - nationwide legal representation for SSA disability issues.http://www.usadvocates.org/
Free 1-on-1 Disability Case Evaluation - Free Attorney Disability Eval. Law Office of Stephanie Joy, Esq. No Fee until you get your benefits. Quicker Results, Higher Success Rate. 1-on-1 with Attorney. All 50 states. Ssdi, SSI.http://www.sojlaw.com/
Free Social Security Disability Help - How to win your social security disability case - The Social Security Disability Resource Site. Have an experienced attorney contact you for a free consultation about your case.http://www.4socialsecuritydisability.com/

Lorie Bledsoe web site

Posted by Lorie on March 08, 2007
I wanted to let everyone know that my new website is up and running. My Sister KXXXX has built a beautiful site for me to share my Story, journaling, Pictures and Testimonials that my family and friends have written to me. I have been through a lot of kleenex!There are links to my Doctor's and just ton's of information that we keep adding to daily. I want to shout it from the roof tops. If I can get it out there in front of hundreds of people then maybe just maybe I can help someone. I would love to keep anyone from having to endure the pain I have went through. I know you all know and I am sure many of you have the same feelings. My family will journal daily when I have my TP/ICT so each and everyone of you that are interested can follow my journey to hopefully a new life of pain free years. If any of you want to pass it on please do! I have been struggling lately with anxiety and a lot of pain and nausea. The thing that keeps me going right now is the hope of a new life and sharing my journey so I can be a voice for the people that are unable to. The support of friends and family means the world to me right now! Thank You for that! Lorie http://www.supportloriebledsoe.com/

New System more precise than ERCP?

New Visualization System Found to Be More Precise than ERCP
Researchers reported at the DDW (Digestive Disease Week) meeting in Los Angeles, that direct visualization with a device called SpyGlass™ altered their diagnosis or treatment strategy with most patients who had been previously examined with ERCP.Data shows that up to 30% of diagnostic ERCP are inconclusive, potentially creating the need for further testing. ‘Direct visualization significantly improves the chances of accurately diagnosing and treating a patient in one procedure, thus achieving the full potential of ERCP’, stated lead investigator Yang K. Chen, MD, from the University at Colorado at Denver and Health Sciences Center. Both bench simulation and animal testing showed that the SpyGlass system to be effective for access, direct visualization and biopsy in all bile duct quadrants. Furthermore, this procedure can be performed by a single operator, as compared to conventional systems where two operators are required. In this investigator initiated first human use experience and bench simulation study, the researchers used the SpyGlass system to examine and treat 22 patients with various disorders. According to DDW co-presenter Douglas Pleskow, MD, Colon Cancer Center, Beth Israel Deaconess Medical Center, Boston, Mass., ‘the use of SpyGlass altered the initial ERCP impression and ultimately changed patient treatment strategy in 19 patients.’ To overcome the limitations of conventional ERCP, this new system uses a miniature 6,000-pixel fiber optic SpyGlass probe that attaches to the camera head. The probe is inserted through a single-use access and delivery catheter that can be steered in four directions to access and inspect all four quadrants of the treatment area. The system attaches directly to a standard duodenal scope. The SpyGlass system is manufactured by Boston Scientific Corporation. The company’s Senior Vice President, Steve Moreci, summed up the results by saying that ‘These studies indicate that the SpyGlass Direct Visualization System has the potential to redefine how ERCP is performed and to potentially help physicians obtain a more accurate diagnosis quickly.’

Dr's Oath..First Do No Harm

"The D,R fundamental role is to alleviate the distress of his or her fellow men,and no motive, whether personal collective, or political,shall prevail against this higher purpose"Declaration of Tokyo, World Medical Association (1975)Physicians and other medical professionals swear to do no harm.

Friday, April 06, 2007

Port-A-Cath





On the 25th of June I am going to have a Port-A-Cath inserted in my spine. Below is the information and Diagrams that I have received in preparation for this. What this will enable me to do is deliver very small doses of lignocaine or narcotic medication directly to my spine therefore eliminating my pain. I will have to inject every 4 or so hours . This will then let me wean myself off my narcotic medication and control my pain during this process. The Dr’s believe if I then stay off the narcotic medication for a little while I will be able to restart the same medication and get a much better result or a significantly lower dose. It will be as if I had never taken the drug before. They may leave the port in place for as long as it is working and causing no problems. Up to 5 years.